Development and Psychometric Validation of the Intermittent Self-Catheterization Questionnaire

by: Binny Pinder, PhD; Andrew J. Lloyd, DPhil; Hannah Elwick, MSc; Pierre Denys, MD, PhD; Jerome Marley, RN, BSc, PGDip; and Véronique Bonniaud, MD

Background: “Intermittent catheterization, often performed by the users themselves and known as intermittent self-catheterization (ISC), has become the gold standard treatment for people with chronic urinary retention. To date [2012], there are no validated patient-reported outcome measures for individuals who rely on ISC that focus on ISC-related quality of life and can help health care professionals and catheter users to optimize long-term ISC care.”

Objective: "The objective of this study was to develop and validate a patient-reported outcome measure, the Intermittent Self-Catheterization Questionnaire (ISC-Q), which evaluates aspects of quality of life specific to the needs of individuals performing ISC.

Conclusion: "Overall, the ISC-Q is a valid and reliable outcome measure. The ISC-Q evaluates aspects of QoL related to ISC, and it is therefore recommended that this instrument be used alongside a generic QoL measure to understand a broader perspective of QoL. Use of this instrument in clinical studies could help guide HCPs and ISC users in selecting appropriate catheters. The ISC-Q may be a useful tool in understanding the benefit of intermittent catheter devices and thus lead to more finely tailored and individualized health care interventions.”

Please click here to see a video presentation of this article by: Diane K. Newman, DNP, ANP-BC, FAAN, Adjunct Professor of Urology, Pearlman Scholl of Medicine, University of Pennsylvania, Philadeplida, PA.

Source: Clinical Therapeutics/Volume 34, Number 12, 2012

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